Job Description

The Nottinghamshire Young Persons' CFS/ME Service promotes the management of young people by local community teams under the guidance of Consultant Paediatricians at NUH.



Early recognition of CFS/ME in Primary Care can prevent the need for admission and referral to hospital. There will however be patients for whom local services require the support of colleagues within the specialist team and in very rare cases the young person may require hospital admission. Therefore, the primary focus of this post is to deliver therapy led clinics (NICE recommendations) coordinate, develop services for young people with CFS/ME who are referred to NUH.

This will be achieved through:

Education & Training.



Ongoing development and maintenance of care pathways within Primary, Secondary and Tertiary care (Health, Education and Social Care).



Sign posting young people, their carers and professionals to appropriate services.



Advice and support to professionals supporting young people with CFS/ME.



Direct Clinical Management from diagnosis to discharge (if required this will include transition to other services).



Working strategically at local, regional and national levels e.g. Commissioning of Services, Development and implementation of guidelines in collaboration with the Clinical Network Coordinating Centre (CNCC) (based in Derby).



Involvement in Research and Audit.



Coordinate and manage the care of young people with CFS/ME to meet their holistic needs, working autonomously and as part of a wider multi-disciplinary team (MDT).

Update and develop literature and teaching material for:

Young People (11 - 19 years whilst in education) Younger Patients accepted in extreme circumstances and at the request of Consultant Paediatrician and NUH.

Families and carers

Professionals

Voluntary agencies



Work with young people and their parents/carers, giving guidance in relation to specific approaches and options in the management of CFS/ME:

To enable independent self-management of presenting symptoms.

Comprehensive assessment at first point of contact to determine management plan.

Provide appropriate rehabilitation packages in line with patient and family need.



Contribute to the development and management of the wider service provided by the Clinical Network Coordinating Centre (CNCC) for example the effective use of IT to ensure accessible information to all young people with CFS/ME and professionals.



Appropriate liaison with the young person's named Consultant and joint consultations where appropriate.



Act as an advocate for young people with CFS/ME and their parents/carers.



With over 19,000 staff, we are one of the biggest employers in the city with a central role in supporting the health and wellbeing of our local population. We play a leading role in research, education and innovation.



Come and join our wonderful team at NUH. We are big believers in diversity and welcome new ideas to help develop our team in order to deliver world class healthcare to the vast patient populations we serve. With endless personal development opportunities available, at NUH we will endeavour to turn your job into a career!



We particularly welcome applications from people who identify as Black, Asian and Minority Ethnic, or Disabled, as we are striving to be better represented at NUH.



Work in partnership with young people and their parents / carers through:

Support Groups / education awareness sessions

Satisfaction surveys

Service Development

Attending relevant conferences and network meetings (peer support and shared learning)



Management of a telephone service to provide advice, support and coordination of services.



Communication of complex information, which will often be required in highly emotive and often hostile environments.



Responsibility for a clinical coordinator led clinic within the Trust for Young people with CFS/ME.



Organise and facilitate case conferences as required.